[Updated] Phantom Limb Pain Research - University of Nottingham

Experiencing phantom limb pain?

We would like to explore whether participating in an online support group could help individuals living with phantom limb pain better manage their condition, to reduce pain or better wellbeing.

The background for us undertaking this study, is that less than 10% of people diagnosed with phantom limb pain experience lasting pain relief following treatment. Which can have severe negative effects on one’s health. We are exploring alternative avenues to help the remaining 90% manage their phantom limb pain. We are therefore undertaking the current study in hopes of better informing future research and medical practice.

Hi, my name is Jonas Ruud Gravli. I have a Bachelor of Science in Psychology and a Master of Science in Health Psychology. I am personally interested in improving the treatment options available for people who experience post-amputation pain, particularly phantom limb pain. As such, I am currently researching the potential of online communities (such as this one) in supporting people living with phantom limb pain. Specifically, how you engage with the community, and how that could affect your experience of phantom limb pain and your daily life.

Some of you may recognise this study as it was a part of my master’s project during the 2018-2019 period. However, we did not get enough participants to examine the relationship between online support group participation properly. I am therefore continuing the research. Thank you to those of you that have filled out the questionnaire, there is no need for you to do so again, so please do not fill out the survey if you have already done so.

I would greatly appreciate it if you would take the time to complete an online survey, as we only have about half the number of participants needed. If you experience phantom limb pain to any degree and you are above the age of 18 years. It will only take 15 minutes at the very most and you will remain completely anonymous. As a mean to demonstrate my gratitude, we will be giving away five £10 (equivalent to about $12.88 American) online gift vouchers (of your choice) to five random participants of the study, once the study is completed. Hopefully by January.

Further information and access to the study, your involvement and the gift voucher will be provided to you through this link:

Without more participants, the study will lose its impact. I would therefore like to thank you for considering participating. If you have any questions, I am more than happy to answer them. Please contact me on my work email, [email protected] I will not be responding to other forms of messaging, as per ethical guidelines.

Again, I would like to thank you for considering participating in the study. I hope to use this to contribute towards the improvement of phantom limb pain management.


The Australian Pain Management Association Ltd. (APMA) is a health promotion charity providing advocacy, information and practical support for people living with chronic (persistent) pain and their families. APMA is the consumer health organisation for all Australians who live with pain. APMA is your voice.


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Australian Pain Management Association Ltd. (APMA)
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